Given that 'Dr Amazing' is away this week, and knowing that I am so reliant on Haydn for personal care, including dressing changes, the Palliative Care doctor decided to try an 8mg injection of Dexmethsone immediately with 4mg tablets taken daily, in the hope it would reduce swelling to the area. The hope is that, with swelling reduced, I will breathe a little easier and feel more comfortable which obviously means passing urine regularly.
It is now one week later and I have been on the steroid [Dexmethsone] for almost a week. There has been some easing of symptoms. This feels like a difficult journey to undertake! It does appear that this dreadful disease which now appears to be a fungating tumour is spreading quickly, and aggressively, across the chest wall, causing swelling of glands and vessels. Not a pleasant sight or thought! My right arm is so swollen it is hard to believe the skin does not burst. The arm and hand are covered in tiny bubbles and we can only wonder what is in store? There are absolutely no clothes in my wardrobe that fit me and leaving the house has become somewhat distressing. This is the most incredible journey. I have discussed with Palliative Care my wish to be given whatever is necessary to ease my pain and ensure my comfort as much as possible.