'When we honestly ask ourselves which person in our lives means the most to us, we often find that it is those who, instead of giving advice, solutions, or cures, have chosen rather to share our pain and touch our wounds with a warm and tender hand.'
- Henri Nouwen
I have chosen this quote simply because it expresses how I feel 'at this time.' To those of you who hold my hand on this journey, you have my love and gratitude. I have learnt that it requires sensitivity and caring and is certainly your gift to me. Advice can serve no purpose at this time.
Today began with my monthly doctor's appointment. Yet again I left the Practice giving thanks for the day that Dr S became my Medical Practitioner. I could feel the sadness in him as he went about filling in forms that will allow free access to physiotherapy treatments for lymphatic drainage and also a request for ongoing Psycho Oncology services with Cath. Dr S's facial expression, when he checked my wound, said it all. My Community Nurse had suggested I ask for his opinion on a nasty vein in the area. Her concern is that it may burst and, being on warfarin, could be frightening for me. Knowing what may happen allows me feel more comfortable. Dr S is now trying to keep me one step ahead of the pain by providing suitable pain medications. He has also suggested fortnightly visits, or more often if necessary.
From there it was off to see my Bowen Therapist who worked solely on lymphatic drainage which she has never done before. She estimated that my arm could contain as much as two to three kilos of extra fluid. I would say that is quite possible. I weighed myself this morning and my weight had 'shot up' three kilos in just over one week. It happened so easily. The treatment has certainly stirred things up; I have had to 'go within,' replacing pain with joy since the treatment. It is interesting to note the way the fluid has moved out of some areas. Instead of living with a swollen, lymphoedema limb, I now have a right arm that has ridges, lumps and dents. I am normally very careful when having manual lymphatic drainage as I did develop cellulitis on one occasion, post treatment. I normally see a therapist at the hospital, however, she has been away for a month and the next available appointment is the end of September; I simply could not wait that long. Dr S has suggested another physiotherapy practice, hence the Referral which will give me five free treatments.
Tomorrow we have another trip to Newcastle; it will allow me to keep my Psycho Oncology appointment. At times like this that I can see real benefits in relocating. Going back to town sounds like a plan. Dr S suggested it today and it is something that definitely deserves consideration. This is one of those times that I would like nothing more than for my daughter in Victoria to be well enough for us to spend lots of time together.